2hearts - archive

Cameron

February 16, 2006
Cameron update-he went to his Peds checkup on Monday and he is still runny nose and cough with some weezing so he got a perscription for an inhaler...so far it has stopped his coughing..but the runny nose continues. I really think the scales there are way off. It seems Cameron has lost 2,lbs since Jan...but I knew his eating was off because of the cold...but 2,lbs? Anyway he is still pretty energetic and keeping me on my toes by chasing him down to wipe his nose. I just wish he could get over this cold...its been over 2 weeks now.

Cameron is doing great otherwise. Please keep him in your prayers, I don't like to see him lose any more weight.
Deeana

January 19, 2006
Cameron had his Lab work done yesterday and really suprised me by not throwing a fit of screaming as soon as we hit the parking lot.He was really good and even told the lab tech that he liked her. Even though it took 2 pokes to get his labs. Later the Cardiologist called and said his levels were kinda low and increased his coumiden again.He also ordered a Chem panel for next week..I hope he is not concerned about anything.

January 10, 2006
Greetings to everyone.
Cameron had his Cardio checkup today and is doing very well. The doctor upped his Enalapril and said he will be taking this med long term. Good news is that he will be taken off his Coumiden next month.

Talked to the dietician about his picky eating but since he is gaining weight....now a whopping 38lbs....I still can't believe that one, there is no need to worry about his pickiness right now..but I still don't know where he picked up this extra weight....2,lbs since Nov 10th. And he is so active its driving me crazy. He can't be still for one moment..but I am so glad he is doing wonderfully. His pacemaker was adjusted a little and will not have to go back to the Cardiologist for 3 months.

I didn't get to wish everyone a Happy New Year so I am wishing you one now. May God continue to bless and keep everyone Healthy, Happy, and safe another day, Month, Year.

Deeana grandma to Cameron HLHS 3yrs old (Post Fontan Nov 17th-pacemaker)

December 17, 2005
Seasons Greetings
Well its been 1month ago that Cameron was having his Fontan surgery. This time has just flown by. He is doing so well.
I got a call from the Card to up his coumiden med until his next lab workup which will be on Dec 28th. And his next Cardio appointment will be on Jan 10th. I hope everyone is enjoying this christmas season.
God Bless,
Deeana

December 09, 2005

Cameron had his followup visit with his Card on Tuesday and all went pretty well. They adjusted his pacemaker and lowered his coumiden dose a little. Dr Caton said Cameron has recovered quicker than he expected but will still be on restricted activities for another month. I pray that all is well with everyone...that this season brings much blessings and good health your way.
God Bless,
Deeana & Cameron HLHS 3yrs old (post Fontan-pacemaker)11/17/05

November 29, 2005
Praise God ....we are home. Cameron goes back for labs and chest xray on Friday but we are just thankful to be home. While driving I was praying and Thanking God for the chance to have this wonderful child again riding in the car and hearing him sing praise songs as we listen to our favorite christain radio station. He can still belt them out like nothing ever happened. The doctor has restricted his activites for a while but that is expected with all he has gone thru.

Just wanted to Thank everyone for the many prayers and words of encouragement..May God truely bless everyone of you.

Deeana grandma to Cameron HLHS 3yrs old (post Fontan-pacemaker)

November 28, 2005
Update#8
Looks like we'll be going home tomorrow. Cameron is now on the floor and walking the halls to get to the playroom several times a day. He will have to be on his lowfat diet for a couple of weeks. The Card told me that a lowfat diet helps with plural enfussions. So far Cameron is free of plural enfussions...and I hope he stays that way...I have heard so many stories of the nightmares you have to endure with them. The Pacemaker is doing great and it was tuned this morning and won't have to worry about it for another week or so.

I will try and update when we are home cause I know it will be a busy day getting all his prescriptions filled and the long drive home and setting up his appointments for the next week. So I will say bye for now and pray that God will keep you all safe, healthy, and happy another day.
Deeana & Cameron HLHS 3yrs old( Post Fontan-pacemaker)

November 19, 2005
Update#2
Cameron is doing well at the moment..last night we had quiet a scare. He started having a rythem problem and had all the docs and nurses pacing the floor..for a while..his blood pressures were so high and he was crashing due to the arythmeia at around 7pm and they wouldn't let me in the room until 9:30pm...but after he stablized he has been doing well since...he has some bleeding in one of his chest tubes which Dr Macdonald thought might be a coiladerial starting to bleed again..but this morning he is doing better and now the thought is that he might have had too much output which made him too dry...he was given some blood and it helped.

At one point the dr was talking about putting him back on the vent because his breathing was so labored during the whole arythmia episode...but was really wanting Cameron to stay off and keep breathing on his own if all possible. Now this morning he looks great again but is very congested and really needs to cough..we have him propped up and blowing bubbles to exercise his lungs. He is stubborn and refuses to cough.

Dr Macdonald is less nervous about him today which is good..I just praise God that they got everything under control. By all means don't stop praying for him..keep them coming. God knows his needs and I believe he will bring him through all this safely. I will try and update again when I can.Thanks for being patient with me.
God Bless,
Deeana grandma to Cameron HLHS 3yrs old

November 18, 2005

Cameron went into surgery yesterday morning at 7am...then I was updated at 9am that they were just starting to do the incision and that it would be a while before the next update from the OR. Well to make a long story short...Cameron's surgery actually started at 9am and he didn't get out of surgery until 7:45pm thats right....But God had his hand on him the whole time and the surgery went well...the pacemaker was placed and is working great.

We finally got to see him at about 9:30pm last night where he looked a little puffy but his numbers were wonderful...his Sats were 100 and even this morning they are holding at 98 to 100. His blood pressures have been a little low at times but they give him fluids and they come back up. I was told this morning by the nurse that Dr. Macdonald Cameron's surgeon came in last night to check on Cameron and ended up falling asleep in the chair as he watched over him...they had to make him leave at about 2am so he could get some rest his self. Now isn't that a wonderful Doctor...almost like having 2 guardian Angels.

Anyway Dr Macdonald said that the surgery itself was long due to so many coiladerals (sp)and a lot of scar tissue..but the fontan went without any problems. He did say that he didn't know how Cameron lasted as long as he did at home without a pacemaker...cause when he installed the pacemaker his heart did so well with it. My sister-in-law Lena said he was living on prayers...and I thought that that was so true..and how God just comfirmed that thru her words...So now we are just paising God for a great outcome ...Cameron will still need your prayers as he continues with is recovery..and so far he is doing well...after he was exsubated this morning he was already asking for food....so that tells me he is going to be ok. Well I will update again when I can but just letting you faithful people know that all is well.
God Bless,
Deeana grandma to Cameron HLHS 3yrs old

November 10, 2005

Well Cameron had his Kidney scan today -No Kidney on his right side and his left Kidney's length last year was 7.6 centimeters and now this year 7.8 which means it didn't grow very much in a year. Dr Kammal the nephrologist said this is the size of a normal kidney but for Cameron it is small..he needs it to be big so it can do the work of 2 kidneys. So the news is for now to just watch it....hoping after the heart surgery it will grow do to the fact he will get better blood flow...but not really sure it will happen.

He is scheduled for another scan in 9 months. They just want to watch him. Since his blood pressure is great and there is no swelling anywhere and he is not losing protein in his urine and his kidney function is fine....we will just watch him and wait to see if this kidney will even have any problems later on. Praying that this Kidney will be able to keep up with his body growth...and output. God knows our needs and provides to us out of his tender mercies and great love for us...I know He will see Cameron thru. So today I am not unhappy about the outcome...I know God can change things as it needs to be done...Thanking God for Camerons good health...and praising God for his blessings in my life.

Thanks so much and don't forget Cameron has heart surgery on Nov 17th Please Please keep him in prayer.

Deeana

October 30, 2005
We have a new surgery date....its Nov 17th. Cameron goes in on the 3rd to clinic to get his flu shot..which he was suppose to have last month but they said no at that time cause it was too close to surgery date.
I called the Cardiologist the other day to see if we could postpone surgery until spring so it wouldn't be in the cold an flu season but he said he thought Cameron should stick with the Nov 17th date cause he would have to do a re-cath if we wait and he doesn't want to put Cameron thru another cath if he don't have too. Besides he said Cameron needs his pacemaker which they will do at the same time as the Fontan surgery. So I just want to trust God with the whole situation.

So if Cameron don't get sick before NOv 17th he will be having his Fontan. He will probably spend Thanksgiving in the hospital... but oh well we have already spent one thanksgiving and a Christmas in the hospital so we know what to expect. My husband will only get to be there on surgery date and maybe the day after then has to get back to work cause its the busisest time at work with special orders where he works. I ask for everyone to keep Cameron in their prayers as the day approaches for surgery...he will need them.

I will post again if I get anymore news. Thank you to everyone who stops in to check on Cameron and may God bless,and keep your happy,healthy, and safe another day.
Deeana

October 22, 2005
Update on Cameron...his neck now looks back to normal except for a little brusing. He does have a terrible rash due to all the tape that was on his neck and where he had his pick lines that they pulled out from his groen area. His skin is so sensative and I hate to see him all rashed up...so now just have to make a note to doctors when they try again that he is alergic to tape. I haven't heard from the doctors yet but they did say it would be a couple of days before they call with a new surgery date...so now we wait. I ask the doctors assistant how many times this has happed where they nicked an artery and had to stop the surgery and he said it happens at least once a year ...so I said it had to be on Cameron this year huh..and he said yeah...My husband and I are not angry at the medical staff...we know they are human..but I told the surgeon that I was glad God gave him the sense to stop when he did ....he just laughted but I really meant it...God was watching out for Cameron like he always does...because of the many prayers that are said for him...and because he loves him. So keep praying for him and I will post again when I get a new surgery date.
God Bless,
Deeana

October 17, 2005
Canceled again...
Cameron had an artery nicked while putting in a line and doctors felt it was too much of a risk for a serious bleed. So he is in PICU coming off the anasteshia and will go to the floor tonight and maybe go home tomorrow. Then in 3 weeks after he recovers from this they will try again. So for now No Fontan Surgery. That is all for now cause the computer time is short. Keep him in you prayers everyone and thanks for checking in on him.
Deeana

October 13, 2005
We just got back from Cameron's pre-op testing. Everything is a go for Cameron to have his Fontan surgery on Monday the 17th. As for now he is wearing a Holter monitor for 24hrs to check his rythem while he is active and when asleep. We turn it in on Monday before surgery. Cameron is first case and his surgery will be longer due to him getting a pacemaker placed as well as the Fontan. I will try and update if I can find a computer in the hospital. Please keep him in your prayers that all goes well with no infection...or setbacks. That I can hold up without falling apart infront of him. He pretty much knows what is going on about the surgery but not about the pain he will have to endure..and it breaks my heart to think about him suffering..espeacially since he suffered so much with his Glenn...Pray we are in and out of there in record time with no complications. There is Power in Prayer so let us agreee together that God will see him through safely.

September 15, 2005
SURGERY WAS CANCELED FOR TODAY Got the call yesterday..it was rescheduled for Oct17th with pre-workup on Oct 13th.
yeah we were all packed and ready to go just waiting on the call from the social worker to let us know if we had a room at RMH and she called saying We were all set...then a few mins later she called back and said the nurse forgot to call me and let me know surgery was canceled.. .how upsetting cause I could have missed the call and wasted my time driving..but it all was not in God's plans. I let out a big sigh and thanked God that he knows best for us.

So now we wait...the nurse did say that we could be called earlier than the 17th if a spot comes availiable...see they switched it because they have a Surgeon..Dr Handley from Stanford coming on Mondays and they want to have him oversee Cameron's surgery...so I said great if God wants more there to watch out for Cameron then so be it.

Cameron was dissappointed though because he thought he was going to the RMH for the night..so now we have to take him to chuckie cheese instead.

Well that's about it...thanks to everyone for their prayers and keep them coming. May God Bless and keep everyone safe, happy, healthy and here another day.
Deeana

September 02, 2005

My Poor baby...he had his dental surgery on the 30th of August. They extacted 4 of his front teeth and filled 3 back teeth. Dentist said that his front teeth were very thin and brittle a big source of infection...Duh...If they would have just fixed them when we first went in..instead of making him wait 10months he would still have his teeth. Dentist did say that he seen a lot of this with kids who have been on steroids and Cameron was on steroids for over a year. Anyway he is having lots of problems eating...but is feeling pretty good.

We go on Tuesday to his dentist in Bakersfield for a follow up to make sure he is healing alright. So now we just look forward to the Fontan on the 15th. Thank you all for checking in on us and keeping us in your prayers...will post again when I have anymore news....on my toothless wonder.
May God bless and keep everyone safe, healthy, and happy another day.
Deeana

August 04, 2005

Cameron went to his follow-up visit yesterday to check his neck and groin where they did the heart cath. It was with a differnt Cardiologist cause Cameron's Card was out of town. But he did tell me that they all( board of Cards) had a big meeting on Monday and discussed Cameron in detail. So now we have to go see the surgeon Dr. MacDonald next week to discuss the Fontan.

Cameron got his date for surgery. It will be on Sept. 15th at 7:30am. So for now we have a lot going on this month and next. Between my doctor appointments and Cameron's we will be spending a lot of time in waiting rooms. He still has to do the dental work on the 30th..and visit his pediatrician on the 29th.

Oh I almost forgot the update on my sister...she is doing ok...NO CANCER thank God. She is just recovering now. So thank you all for your prayers. May God truely bless and keep everyone safe, Happy, healthy, another day.
God Bless,
Deeana

July 26, 2005
Everything went great with Cameron's heart cath today. He was an easy stick too...no extra boo boos. The Card said the pressures in the lungs and heart were wonderful and that a nurse will be calling in about a week to let me know the date of the Fontan which will be scheduled for Sept. At that time he will be having a pace maker installed as well. He had to wear the Heart Halter monitor yesterday and so the Card just told me their plan to install the pacemaker as a safty net with the Fontan. I also met a lady there at the RMH who's son born with HLHS was having difficulties after his Glenn. He is 5mos old and his name is Gaberiel..I told her I would call on my internet friends to pray for him...so please take a moment and pray for him. Also please pray for Jerra Hall...she is facing another surgery and her family has been so strong through all her difficulties...her carepage is jerramiahall.
I will update again when I get the next surgery date..so until then may God Bless and keep everyone Happy ,Healthy,Safe...another day.
Deeana

July 21, 2005
.. they have scheduled Cameron for his heart cath for this coming Tuesday the 26th. We will have to be at the hospital on Monday for the pre-cath testing and labs. Then we get to stay the night in the Ronald Mcdonald House so Cameron can be up and there at the hospital nice and early. He is first case 6am. The doctor didn't want to wait on UCLA any long to get Cameron's dental work done...and since they cancel his Dental work until Aug 30th that left enough time to get this heart cath done before fall season. So please keep him in your prayers that all goes well and he will be up an running soon after. He will let me know as to when his surgery will be scheduled but it will have to be after the dental work....so I will post again when I know that date. The only rough thing about all this is that my sister will be having her surgery on the 26th as well and I won't get to be there with her when she wakes up and find out if she has cancer or not. Please pray for her too. ... May God bless and keep everyone Happy , Healthy ,and safe another day.
Deeana

July 16, 2005
Hi everyone. I got a call on Wednesday that Cameron's dental surgery was cancled due to there being 2 other heart kids who were getting a heart transplant and there was no OR available to do his dental work so it has been rescheduled for Aug 30th and no matter what they can not cancel on him again so I was glad that 2 kids got their new hearts. On another note I am requesting prayer for another HLHS child name Jerra Hall who just had her Fontan surgery and is having lots of complications. Her carepage name is jerramiahall and it would be great to let this family know that you are praying for Her. I will post again when I have more news concerning Cameron but as for now I Pray that God will keep everyone Happy, Healthy, Safe and Here another day.
Deeana

July 11, 2005
Hi everyone. Cameron is doing much better after his stomach bug which lasted 8days...yeah..now we are just trying to put the weight back on that he lost. Cameron goes in for dental work on Thursday and they told me he may stay overnight just to watch him and make sure he has no reaction to the general anastitic since he has cardiac issues they called it...its called HLHS. They said it will take them anywhere from 2 to 3and half hours to get all the work done. So he will need your prayers once again. At the moment our household is in a uproar. Cameron's mom moved in with her other son Kaden who will be 2yrs old in Sept and its like a maddhouse here. Cameron is jealous of him and Kaden's behavior is so bad..I just hope I can bear it for a while longer. The funny thing is that since she has been here Cameron has been calling her by her name and not momma..she don't seem to mind. Its just sad to watch as they have not spent hardly any time together and he doesn't really know her. Anyway Keep our family in your prayers we will need everyone of them.
May God Bless and keep everyone Safe, Happy, Healthy another day
Deeana

June 23, 2005
Sorry to keep you all holding on my sisters surgery... It is rescheduled for next month on the 21st

Ok for Cameron's update..he has a stomach bug...not too bad but when you have a Fundo it just makes it twice as painful. We're trying to keep him hydrated but his eating has really slowed.

Camerons Cardiologist called to tell me that he was going to get his heart cath scheduled after the dental precedture...2 weeks after anyway so I'm thinking at the end of July early Aug. but will let you all know so you can keep him in your prayers. I just can't wait till its all over. Well thats it for now. Thanks to everyone for checking in. May God bless and keep you all Happy, Healthy,and safe another day.
Deeana

30 June 18, 2005
Cameron will be having his dental surgery on July 14th..but will have to make a trip up on the 7th of July for consultation with the anesthesiogist. We also have to go see Cameron’s Ped on July 13th so he can be cleared for this dental procedure. ... Now if I can just keep him from getting sick so nothing has to be delayed it will be great to finally get this taken care of.

Well I have a prayer request for my sister Lana. She is going into surgery on Tuesday for a Mass that was growing in her uterus..Pray that its not cancer and that she will be fine.

thank you all for checking in on Cameron and his progress. May God truly bless and keep everyone Happy, Healthy, Safe another day.
Deeana

May 14, 2005
Tomorrow- May 15th, Cameron will be 3 yrs old...HAPPY BIRTHDAY BABY!! I can't believe its been that long ago since he was born. They grow so fast. He spent time at his other grandparents house yesterday and had a blast. It gave me a much needed break for about 4hours. He got to see his mom twice this past week and that in it self is a miracle. She promised him lots of stuff and hoping she follows thru for his sake. He is doing really well except for his eating. He is going through a picky stage and its hard to get him to even feed him self lately. I am praying he don't lose too much weight. Maybe the warmer temperture has something to do with it but I think he is just in a stage. We are going to take him to ChuckE Cheese for his birthday and since it is on a Sunday hopefully there won't be to many people there, but still planning to take plenty of Antibacterial Gel.

Just want to thank everyone for stopping by and checking on Cameron and keeping him in your prayers..they are very much appreicated. Wishing you all could see this wonderful boy in person...you would say that prayers do work and God is Merciful. So until next time May God bless and keep everyone safe, happy, healthy another day.
Deeana

April 24, 2005 at 04:42 PM PDT
Hello everyone,
Sorry its been a while since I updated..but everything has been going so well. Cameron had his Nephrology appointment on April 22nd.

I found out that Cameron didn't gain any weight since the last doctor's appointment or lose any either. That was great to know since his Cardiologist took him off lasix on March 14th. But apparently he had a low grade fever when we went in. 100.1 but showed no signs of being sick, so that was confusing to me..and its been 2days since then and still shows no signs of being sick.

Anyway he will not have to go back to Nephrology until Nov. which is when they will do his yearly Kidney scan to check for growth. His labs came back and his kidney function was doing great so that was a load off my mind. Just gotta pray that his kidney will continue to grow and be able to keep up with his body growth.

Well that is about it for our update...Please keep another little boy ( Xavier) in your prayers..he just had a heart transplant and needs as much prayer as he can get. Thanks so much for you faithfulness to pray. May God Bless and keep you all Happy, Healthy, safe another day.

Deeana & Cameron HLHS
http://home.earthlink.net/~ladyaudene/cameronslittleheart/
( 3yrs old in May)

March 21, 2005
Well just got a phone call from Camerons cardiologist...he wanted to tell me that the panel of Cards and surgeons had their big meeting today and he brought up Cameron to them and discussed his situation with them all and have decided to schedule a Cath for Cameron in June to check pressures and from that Cath they will decide if he will get his surgery this summer. If all is well, and they can hold off then they will do the surgery next year in the summer....but for sure wanted to wait till the dental surgery is over before doing the cath. He also said if they find he has collaterial that they will coil them off.

So just wanted everyone to know so you can keep Cameron in your prayers. God is faithful and your prayers are working cause God is listening.
Deeana

March 19, 2005
Sorry its been awhile since I posted. Cameron had his Cardio visit and all was well.His echo was great.The DR. even took him off his lasix which I thought he would always be on. Now Dr. said he is going to put off Cameron surgery for a while...even though he is 33lbs and the right size he now thinks he could wait till he is older...so we will talk again in 6months to decide when will be best time for his surgery. Meanwhile I am so glad it was put off for now.Since he has his dential surgery coming up I didn't want him to go through that and then go in the hospital again for the fontan. The doctor did say he wanted to consult with the surgeon about Cameron and see when he thought would be a good time for the Fontan....I don't know, I really think Camerons Cardiologist changes his mind everytime we go in to see him...so from now on I am not going to get so workedup about the Fontan...cause we really don't know when that will be. Anyway Cameron is doing fine..except he woke up with a fever this morning at 3am...seem everytime we go for clinic visits he comes away with a bug of some sort. This is the 3rd time this year he has been sick and I am so tired of it...well he has a pediatrician visit in a week but if he get anymore syptoms before then we will be seeing her before then. Thank you all for keeping him in your prayers..and please continue to pray for both of us. It really does make a difference. Well thats it for now, May God keep Cameron Happy, Healthy, and Here another day.
Deeana

24 February 28, 2005
Last day of this month..I can't believe we are going into March already. Cameron has been pretty sick with a cough...so he just got over having the flu..or slight flu to get this horrible cough. His Ped said it was a virus and gave Cameron Albuteriol for breathing treatments cause his sats were around 75 to 77 when we were in her office..it took forever to get them to 77..I think his hands and feet were cold and therefore couldn't get a good reading. She said he sounded clear but said that the breathing treatments would help him...but so far he is still coughing but breathing great. We go to the Cardiologist on the 14th of March and I am hoping everything is ok.

I just read the other day of another baby born with HLHS passing away after just 70days of life..she showed no signs that she was in any distress..it broke my heart. I just can't take for granted the days I have with Cameron. This is what HLHS has taught me. He has been telling me that he is sooo tired all the time so I just know it time for the next surgery. Even though My husband Jimmy and I would love to put it off until we know for certain that the surgery would be successful..but we are not guarenteed that...and that is what scares us. God only knows what is in store for Cameron and this is a time where we need to put our trust in God and Him alone. And its so so hard. But we will. We have to.

On the 2nd of March is Cameron's uncle William's birthday and he will be sixteen years old...this is my third child..my baby..and Cameron adores him....well when he had just turned 1year of age he became very ill and was diagnoised with having ..cancer. A massive tumor growing in his abomdoment, I thought my life was over then..but I chose to trust God to bring him through and he did. I prayed Psalms 91 over him and there is a part in that chapter that talks about a 1,000 will fall at my side and 10,000 will fall at right side but none shall come unto you..

Well the neat thing is that on Williams Last dr appointment to check him out and see if he was still in remission....the dr. said something that caught me by surprise...he said only 1 in 10,000 survive this type of Cancer and I have studied it completely and have to say that he must be a miracle. That is why I believe in prayer and know God hears our prayers and he will remind us of his goodness..Is there anything too difficult for him. I give Him the Glory for that as all thing.

Anyway the 2nd will be a big day around here..and Cameron of course says its his birthday...he thinks everyday is his birthday or if not his ...its his stuffed toy Kitty Cats birthday. Please stand with me in prayer that Cameron will stay safe, Healthy, Happy, and Here another day.
Deeana

January 27, 2005

The flu is really going around in our town. Please keep Cameron and I in your prayers. I am his only caregiver and I am feeling kinda sick and I don't want Cameron to catch it. I know God is faithful to hear and answer your prayers. So until next update May God bless and keep everyone Happy, Healthy, And Safe another day.
Cameron's grandma Deeana

January 20, 2005

Hi everyone,
Cameron had his UCLA dental consultation yesterday...and what a day. First we had to start off early in the morning for his appointment was at 8:30am it was a 3 and half hour drive.

When talking to the receptionist she began telling me that I needed a court order to be able to get Cameron's teeth fixed there..I gave her a copy of guardianship papers and she still insisted that I will have to have a court order if he has to be put under anaesthesia (spelling not sure of) so now I will have to check into that. Just another event to add to our lives..right.

But I choose to keep trusting God cause he is the one who entrusted me with Cameron and he will make the way for him too.

Anyway, Cameron would not even open his mouth to let them check his teeth and what they were able to see, just said he will have to be put under in the OR and that was that. They do not want to chance anything with his heart condition and so now we are on a waiting list for May to go back to UCLA for all his dental work.

So now I have to talk to his Cardiologist about putting off his Fontan until at least Summer just because UCLA won't budge on their dates. But he does have to have the work done before the Fontan so I guess this is Gods way of saying to wait a little longer.

He is doing so great and he left that office with a handful of toys from their patient toy chest and 2 toothbrushes..he couldn't decide which one he wanted. So he got Tiger and one with Winnie Pooh.

He is just now beginning to eat really well by mouth. When he had his G-tube I was just praying that this day would come where he would finally start eating food with texture. Now his favorite food is Chicken Nuggets with BBQ sauce of course. And every fruit possible. He loves nuts...can you believe that ...a child who would have never put anything hard in his mouth now likes nuts.

Well I am just so grateful to God for the many that continue to Keep Cameron and I in their prayers. They are not in vain cause I know and see the benefits of them everyday and for that I thank each and everyone of you who continue to lift us up. Please know that we pray too for all the families of the children and babies who God has lead into our paths..who were also born with HLHS and other heart defects...these kids are more than wonderful and without them our lives would be indescribable.

Well until next time may God bless and keep everyone healthy, happy, safe and here another day.
Deeana

December 31, 2004
Cameron and I would like to wish everyone a Happy New Year...May 2005 bring much health and blessings to all.

As I reflect on this past year...I am so thankful for no Hospital stays ...thats right Cameron just had his clinic visits and one trip to the ER for the G-tube...and that is it this year. So we are celebrating a good year for us and also remembering all those who are no longer with us...It has been a year for many tears for the families who's hearts ache for their HLHS babies, and I keep them all in my prayers.

We wait for this next year with much reservation though. We know that Cameron will be having his Fontan surgery coming up and like my husband says ..its hard to think of him so well and then knowing he will be so sick ...he has really become so attached to him this year and I know its hard for him to think about putting Cameron thru another surgery. And the time is getting closer.

Well thats about it...thanks for the many prayers you have prayed this year for Cameron and our family keep them coming. May God bless and keep you all safe, happy, healthy, and wishing you much love thru out this next year.
Deeana

December 20, 2004
WISHING EVERYONE A WONDERFUL CHRISTMAS.

Just a little update on Cameron, he has not been himself the last couple of days..he's been tired and had a fever overnight on Saturday but no fever since. I think he may have picked up a bug at the dentist the other day..in the waiting area..but hopefully he is getting over it himself. But still nothing is keeping him from trying to get into all the presents under the tree. I have to keep a close eye on him in fear that all the lights and bulbs will be on the floor or crushed underfoot.......I tell you God is so good and I thank everyone of you that continue to check in and pray for Cameron. May God truely bless and keep your families in Perfect Peace and in the wonderful knowledge that Jesus is Lord.
God Bless, and Merry Christmas!
Deeana

December 16, 2004
Christmas greetings to everyone.
Well Cameron visited the specialist Dentist today and looks like we are going to UCLA medical center for his dential work.. He'll have 2 visits there.The Doc did say that most of Camerons tooth problems come from when he was on so many medicines. Plus the pediasure didn't help either.

He is doing very well otherwise.

Thanks again for everyones prayers for Cameron ..God hears everyone of them and we can feel the wonders of his mercies everyday. May God bless and keep all the people of the world suffering from a heart defect or heart disease..and may he keep us all safe, healthy , and happy another day.
Deeana

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