Andrew
was born with L-TGA or congenitally corrected transposition.
Basically his left and right ventricals are reversed. He was
asymptomatic and was diagnosed at a well check-up prior to entering
kindergarten.
He had his
first surgery at 6 to replace a very leaky tricuspid valve.
He did well with it until he was 14 when he needed to have it
replaced. He had some complications with an MI during surgery
but recovered very well and was home in about 10 days.
His first
day back to school he suffered cardiac arrest and spent another
week in the hospital as it was determined that he needed a defibrillator
and determined he did not also need bypass surgery. He received
his first appropriate shock from the ICD in October of that
same year.
Andrew continued
to do well until his Junior year when he developed a very severe
case of bacterial endocarditis which quickly shut his kidneys
down and threatened to take his life. He required cpr twice
while at a hospital over 600 miles from home.
He was life
flighted back to children's Memorial when he was stabilized
enough for the trip and we waited for him to improve enough
to have two of his valves replaced and the infected ICD to be
removed.
Dr
Mavroudis and Dr Backer replaced the valves and cleaned up his
heart on May 21st, eighteen days after he was first flown to
the hospital in Fargo, ND. Andrew came home July 16th. He had
endured hemodialysis and a skin graft, a second heart sugery
where a large hematoma was removed not to mention a placement
of a pd cath and removal when he thankfully no longer needed
dialysis.
He is now
a highschool graduate and is attending college this year. He
is one amazing kid with an amazing story and an amazing God
who has been with us each step of the way with His amazing grace.
update:7/2010
Andrew
is in heart failure and is undergoing evaluation for possible
listing for a heart transplant. He had a cath 7/16 which showed
high presures going into his lungs and has remained at Children's
to try to lower these pressures.